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Showing posts with label Pauw's allergy diary. Show all posts
Showing posts with label Pauw's allergy diary. Show all posts

Friday, February 5, 2016

Medications and allergies

We are struggling with allergy medication again . It seems that the medication is not strong enough and yet there doesn't seem to be another good alternative . Ever since we arrived in the UK we didn't find the right medication.
The hay fever medication she gets is just not right. Where the package tells one can take one pill a day she take soften four in a row .
Who can come up with an explanation and a good plan. To tackle the almost daily reactions. What is the best medication . Why is there a difference in prescription between all the countries . Why did we experience these variations in prescription between France, Switserland and Morocco and
now the UK? What is knowledge ? 
Some pills make one sleepy and other simply not bring the sufficient relief .
Our latest appointment with an allergist wasn't helpful and it even seems like there is lack of true insight in the allergy issue as a whole . My concern is: she needs the right medication to be safe. There is no need, as described in her file, for further consult as her conditions won't change . Her severe and life threatening allergies will stay. Innovations and new medications in the future might hopefully bring insights in her afflictions .

Friday, January 1, 2016

Intelligence and fair seriousness

Happy new year from London to all of you! I wish you wisdom and strengths, love and peace,  spirit and perseverance,  health and succeed. Be good to each other. Love and no war! Let us just fall in love every day again and be in love with our family and friends .

I am dedicated again to my wishes to make a wonderful and happy new year.  There are so many things to look forward to. I have my three girls who I wish to be healthy and be surrounded by love and good friendships. I can't believe I have another 12 grader. Wish all your dreams come true. 
We will see where we will travel, move, settle, live, wander and re-invent ourselves again as we're in between jobs. We might ravel and move again .... That would be a lovely possibility to embark again and envisage a new journey. Come time come wisdom.
I will study and continue to research allergies and food and ways to live sincere. Genuine food in a world where too many are struggling . I will be patient, vulnerable and following my intuition. Writing a note or a few words every day. Tell the stories.


And we will find time to continue our search and dream in the making of our stories about what we think is: a way of living with our allergies. As a medicine student she studies now in depth her allergies, the reactions, the shocks. We found together a way to share, what we experienced as a long-life condition, and focus from different angles; the mother and the daughter/the patient, the parent/educator and the medicine student / the professional.

It is a modus to make life easier while accepting one's afflictions.
We really like the way how things have worked well for us and we like to exchange this with you.
Our habitude is an old recipe. We never really changed the rules of the game, since 1997... when the little girl opened her eyes..
Comes health come thoughts about how to eat. What we eat is who we are, who we want to be, how we feel good. No fairy tale, no wonders, intuition has been since always my deeper guidance. Intelligence and fair seriousness are without any doubt beacons in a life threaten by deadly allergies. Happiness, love, understanding and knowledge from the community of the patient are life savers.
 La Mer, Cassis

Saturday, October 31, 2015

Food is Life

There has been a few articles this week about the dramatic effects and impacts about processed meat on our body and health. Plants in full swing and a rather serious advice to stay away from the processed counter. The processed meat seems definitely related to an excessive amount of salt and antibiotics.  Several varieties of meat are according these reports as bad as smoking. The WHO is publishing research and warning the consumer.
Dear Michael Pollen you seem right after all!

When I read about Pollen I automatically think about by mother. I mentioned her often in my writings on this blog. I love her and was absolutely at the frontline of a new wave of food knowledge and -education in the seventies. And nothing changed, she stayed loyal and the transmitted her knowledge to me. She might not be my role model for cooking; I mean recipes wise, she's absolutely my role model for nutrition. Her chemistry-medical background and her work in cancer clinics have changed the way she observed the world. When she got married and became a full time mother she never stopped using her scientific knowledge in her challenging role as family 'cook' for my dad and her five children. She's my personal nutrition coach.

Common sense. There isn't really a new thing under the sun. Fruit and vegetables are the two most important groups of nutrition during my childhood. Cycling home from the field-hockey training we stopped at the apple orchard and got an apple for free...   My mother got piles of apples in wooden fruit crates in the small outhouse in the back of the garden. We only ate the fruits from the season. And those apples were so large, so fresh, so unbelievable juicy and I see why my girls get upset with the taste of apples in London when I think back.

Eat and enjoy the richnesses of each season at least if you don't have to deal with any food intolerances or  food allergies. I admit we make exceptions because of my deadly allergic daughter.
I do buy grapes, strawberries and raspberries all year round, simply because of her. Berries and grapes are for her easily to digest. Never had she experienced a reaction while consuming these fruits. And that is a happy feeling!   

I follow the footsteps of my mother and reduce our intake of meat. The girls love a good piece of meat and that's perfect. We really moderate. My allergy girl instead always had a more intense need for meat, not easy to compensate all the limitations she's dealing with since she was a baby. So common sense it is again. Every meal I try to find, since we deal with a life organised around allergies,  a recipe that is a fair mix of myself, allergy prescriptions and nutritional facts. Everyday I cook with intuition. Food is Life! 

Lunch today: plants, fibres , protein, phosphorus, iodine...
It's Halloween, and about my allergy girl.  She's home at home from Imperial College.
And I make: shrimps with garlic in olive oil. Mushrooms, garlic, coriander, lime, white cabbage sautéed olive oil. I boil her rice noodles and serve with soya sauce.

My eclectic kitchen table. The blue bowl is from Japan, which my husband brought me last year. from a business trip. The tiny little bowl has been with me since I left in Beijing (spring 1998). I took it with me in my suitcase, as a last souvenir from my 2,5 years in China. It comes in a set of three. The rectangular plates are French porcelain these I bought in Rabat. They come in a set of four. 

Tuesday, January 15, 2013

Cheese Rolls


Because of food.
Because of waist.
Because of health.
Because of living longer.
Because of life style.
Because of food intolerance.
Because of allergies.
Because of eczema.
Because of the love for food, the time for cooking and the use of leftovers!

These cheese rolls were made the other day,
last week by my youngest daughter. The last in the row and a big fan of cooking just like we all.
The dough was a leftover from a butternut pie.
The cheese is a fresh parmesan. The only hard Italian cheese S is able to digest, to like without all kind if side effects, like itching lips and tongue...
Fresh home made dough
(25 grams of flour, 125 grams of butter and a glass of ice cold tap water)

Roll the dough on your working table top.
Fill with parmesan cheese and roll up again.
We ran out of eggs, as we used the last one for our pie, but if you have one , stir the yolk and paint the dough with a pencil dipped in the egg yolk.

Lovely appetizer with a glass of wine, serve with black olives at the side.


Monday, January 14, 2013

Confused again


Fast-food 'linked to childhood asthma and eczema'

girl eating a burgerFast food often contains high levels of "unhealthy" fat

Related Stories

Eating fast food three times a week may lead to asthma and eczema in children, say researchers who have looked at global disease and dietary patterns.
Data from more than 500,000 children in more than 50 countries suggests poor diet may be to blame for rising levels of these allergy-related conditions.
Those who ate fast food, such as take-away burgers, risked severe asthma, eczema and itchy, watery eyes.
Eating plenty of fruit appears to be protective, Thorax journal reports.
Fast food often contains high levels of saturated- and trans-fatty acids, which are known to affect immunity, while fruit is rich in antioxidants and other beneficial compounds, say the researchers.
In the study, children in their early teens who ate three or more weekly servings of fast food had a 39% increased risk of severe asthma.
Six- and seven-year-olds had a 27% increased risk.
Eating three or more portions of fruit a week cut the risk of severe asthma, eczema and rhinoconjunctivitis by between 11% and 14%.
The study authors, Prof Innes Asher, from the University of Auckland in New Zealand, and Prof Hywel Williams, from the University of Nottingham in the UK, said: "If the associations between fast foods and the symptom prevalence of asthma, rhinoconjunctivitis and eczema is causal, then the findings have major public health significance owing to the rising consumption of fast foods globally."
Generally, people with asthma do not have to follow a special diet.
In some cases, certain foods, such as cow's milk, eggs, fish, shellfish, yeast products, nuts, and some food colourings and preservatives, can make symptoms worse.
Malayka Rahman of Asthma UK, said research suggests that a person's diet may contribute to their risk of developing asthma and that eating healthily may have a beneficial effect.
"Evidence suggests that the vitamins and antioxidants found in fresh fruit and vegetables have a beneficial effect on asthma therefore Asthma UK advises people with asthma to eat a healthy, balanced diet including five portions of fruit or vegetables every day, fish more than twice a week, and pulses more than once a week."

(article: Today on BBC News)
I am confused again, because she doesn't eat fast food, as she is deadly allergic to peanuts and very severe allergic to all kind of nuts not to mention all those allergens that cause irritations enough to feel sick the rest of the day. No she doesn't eat, never had fast food on a regular basis. We do fruit and vegetables, we do the alternation of fish and meat and we do meat in a limited quantity, what did we do wrong???
I know, I know these are possible causes, there is never an answer or one true to each and every allergy, or asthma or eczema patient.
We stay calm and trust and hope there will be answers and I do believe in all the research and et sometimes it makes me all just sad.
having an allergic daughters with all her issues and suffering of eczema too... it is a struggle.


Sunday, January 8, 2012

Because climate

Wonderful, morning glory. Sky up light blue and garden already waiting for me and the dog to come out, and yet the house is so warm. It is this Monday morning, the first one in this brand new year in Rabat. We came home in the weekend and despite the fact that the vacation is over, the friends are at long distance again we are thrilled to be back and have the light so early in the morning.Desperately, her skin. Meaning, the decision of leaving is hardly ever the best to take, the moment always has an impact, but moving North could only be difficult for her derma. Considering something else then. Now still this particular Monday morning start up feeling and to pleased to have smiling faces around me, some regrets too, but an overall feeling of a new start, a new year. And yea I need to come up any way with a plan B, focusing our new family destination in the summer to come. Skin wise I would prefer a southern and dry climate. It will be then a interesting year, for sure. 

Friday, October 14, 2011

Chocolate


There is absolute no reason to be desperate.
Allergies make you feel: sick, lonely, unhappy, frustrated, isolated, misunderstood, special, challenged, beautiful, strong, ultimate decided, angry, excited, blue, exceptional..))
Chocolate safes, comforts and is often the ultimate soul mate.
All year round.
Fancy books, recipes, dreams, visions, senses, celebrations, daily moments, summer, winter, autumn and spring. Just one spoon, a small tiny bit, the deep flavor, dark chocolate, mixed with milk and white. Shared travels, a suitcase that fits you and the diary that keeps your secrets, the dessert stays, the taste recalls all along the road the ultimate happiness. Never annoyed. Chocolate. Parade.


Thursday, September 29, 2011

Surprises

There is no way out as it seems. allergies come, go and return, a journey that necessarily never stops, hopefully ever ends but always surprises. 'May be' I am not allergic to peanuts... But I am allergic now almost every day about all things I have never been allergic to before'. Not easy to understand these staments and even harder to respond to, the only wa I see is to give he all my empathy, love and a full understanding of he frustrations and anger, sme tmes. Ok the facts proove there is the peanut and there are all kind of nuts she' allergic to. Nothing changed. Last summer blood tests were clear as christal and the doctor was certain and determined in her attitude. 'Might be all very unsure that she will ever come over these deadly allergies'.
Few words, very open and honest her reaction. Better. No dreams.
And so I see what my daughter feels,
she has more general allergies and suddenly last week, I thought: she becomes like her cousin, allergic for nightshade vegetables.
A beautiful ratatouille is not any longer a colourful and tasteful recipe for her. Medications are an alternative to ignore and overcome ASAP any eventual reaction. The minute she tastes, the next moment she feels and experiments her body's disapproval.
As time goes by and she becomes older I feel that here is hardly a reasonable support all the moments that she simply can't eat the food she wood like to enjoy, so far so good where Rabat is the pure heaven for what about a wide selection of fruits an vegetables so we vary and alternate as much as possible. Keep up the colors , the vitamins , the variations like the tones and the moods, the dance of the teen she is now.

Wednesday, July 27, 2011

Food, fat and common sense, or the love for food!

Fats: Dietary Guidelines detail the good, the bad and risky - The Washington Post

There are just all the propositions that are well for you body, your brain, your hole self.
For me it's kind of a surprise every time when I read these articles, I think: do Americans really no so little about what's good and not healthy at all, there is a phrase about the too extended list of choices that this may be one of the reasons to grasp the unhealthier alternative, I don't know.
I keep all simple, kind of live the way I grew up, local, local and season choice....................
After years in the south of France and now in Rabat, Morocco, I only can say that I learned to enjoy even more the seasons, the colors, the rich basket filled with the fruit and veggies from the market, OK I admit we have fight with our temptations but then still I try a bakery, where I know that I eat at least healthier fats.

I you are a butter admirer, take a 100% butter not the nasty margarine, go for half salt butter.
Try to dip your bread instead in olive oil, sprinkle if you like with sugar (not the factory processed one).

I am sitting here at my too small kitchen table, my apron with apples gives this day a smile, we just had gnocchi, from the fresh Italian stand at the market this morning in Cassis, where it rained cats and dogs...
I made salad from with tomatoes, cucumber, onion, basel , pressed lemon and olive oil. (all chopped very fine and served in colored bowls). The gnocchi is so tasteful already that we had fresh cheese , basel pepper and olive oil.
The fruit laughs in all her colors, nectarines, apricots, grapes.

S feels better since some days.
the allergies and eczema come and go and I see a fluctuation when we change natural environments and yes she needs her treatments.

Friday, July 22, 2011

F13 Arachide : + 100,00 kU/A/L

No skin prick testing.
The last week she simply took too much antihistamine so the tests wouldn't be of any help really.
The check up today.
my cosmopolitan colorful daughter stays deadly allergic for peanuts, so far is clear. the blood tests are the very clear proof, we kind of hoped things would HAVE CHANGED. No.
And then what , she has practical remain allergic for all groups of allergens she has been over the last 12 years.
No change , no prognoses, not by our doctor.
Hope, there is always hope.
But the scores are much to severe that we can have a solution in a short time from now.
We will be back in the hospital mid November and then do all skin testing.
Next week new blood research will be done here.

What can I say, I feel exhausted and proud, because she is my daughter, because sh's who she is, the way, her only personal vulnerable manner of dealing with these allergies, every day, the hole year round, summer even..................................... She is strong and a precious girl, she's giving it a thought this morning becoming a allergist herself, shifts now from the heart into her very deep own sufferings, any way she goes will be the perfect one for her.
I am so sorry she needs to work this out, on her own, it's a tremendous dark deep bummer, but she's healthy and bright alive, so let's pack the car and drive all the girls a little bit in land, the family house, the vineyards, the farmers, the river, the gorges, eating out side tonight under a eternal sky of stars.
And I should consider what she mentioned this morning about products available online, in a shop of our own, beautiful safe ingredients which you can have where ever you live.
Yes need to get entrepreneurial.........
We'll leaving now for some days.
back on Monday.

Thursday, July 21, 2011

The day before

Nectarines all summer round.
Round and flat pebbles at Bestouan beach this early morning.
The cold icy water, only 15 degrees celcius.
You feel your blood streaming .
Small old fisher barques going out heading the large blue.
Romantic villas hanging over the edges, rocks just push them back and keep them on the mainland.
Lonely swimmers, old village people, strong bodies, swimming the hole year round.
Teens and laughs, all summer long.
We prepare, tomorrow morning we need to wake up early to be in the La Timone Hospital, Marseilles. Extended research and diagnoses, full reports hopefully, better understanding about my allergy girl actual state of mind, body, allergies, life, medications, treatments and so on.



Friday, May 27, 2011

Le Monde.fr : Résultats de recherche

Le Monde.fr : Résultats de recherche: "Les aliments anticancer n'existent pas, selon l'Agence de sécurité sanitaire
LE MONDE | 26 mai 2011 | Pascale Santi | 685 mots
'Il n'y a pas d'aliments anticancer.' Telle est l'une des conclusions du rapport intitulé 'Nutrition et cancer : légitimité de recommandations nutritionnelles dans le cadre de la prévention des cancers', publié, jeudi 26 mai, par l'Agence nationale de sécurité sanitaire de l'alimentation de..."

Balance in spirit and body, food and exercise, culture and art!
Fruits and veggies, limited amount of animal fat, breastfeeding for the first six months.....

All together I think we are doing fine. While taking care of allergies and eczema since baby time until teenage today, a basic diet valued by local products , seasonal linked vegetables and fruits, a modest intake of meat I have seen good results. Golden rules like no many adds, just 4 ingredients for a main plate and for a home made dessert as well makes life simple and very comfortable, if this mean that we can avoid a lot of health issues that's really terrific but not a guarantee for staying untouchable for cancer.

Monday, May 9, 2011

Butterfly

The weather as it seems to be is one of the real aspects that causes here in Rabat the feeling of her allergic fevers, in all aspects and varieties. As we welcome the Summer and time laps , longer in the evening , sitting outside and endless skies to high to catch the night, stripes at dawn , pink and glittering drops, the green of the trees colors deeper, leaves fall already because temperature rises and season change while we are not yet ready to say good buy to another year in Rabat.

Enjoying food in the warm evening air, we find our rhythm in dishes that bring back memories. Artichoke dipped in vinaigrette. made of olive oil, mustard and balsamic vinegar.
French baguette with the Moroccan touch and cheese: goat, emental and comté.
Watermelon deep red in beautiful slices and bright laughter in the blue evening.

Tuesday, April 26, 2011

Some Spring thoughts

Running out of seasons, days, ideas, information, blog notes. 
Running away from allergies... No not really. Hardly ever not a sign from allergies. 
These last days things are pretty well under control, and that's good. 
Too many severe reactions during the last couple of months and those are exhausting. 
What is many then ? It's probably very personal to answer this question. My allergy daughter would certainly respond in a modest way, while she waves all sorrow away with lightness like the butterfly dances on the tunes of fresh breath of the wind. She could easily forget the reactions she had. Most recently during spring break in Amsterdam and short before in march after a school day in Rabat. Others will come up with answers and long descriptions of the specific situation and so and so reaction. Where some won't share an answer at all, blowing their experiences away because of feelings of  insecurity, anxiety,  misunderstanding, vulnerability.
IN her words, picked with caution my colorful girl is neither without doubt nor without proud. The action, the expression of attitude are connected with a range of feelings and colored by a mood, a moment. 

I know that sharing the fact of being allergic is not always easy. And much of the resistance is connected to the questions we pose ourselves. Often we are driven, challenged or stopped in our actions by the voices, the questions in our own head. The answers we receive to our own answers, the feelings we have about the environment, the doubt to act or not. being a minority makes that you feel overruled and in a learning environment where you spend most of your time it's a fight to get your personal message out. And is it necessary in the end? I don't know. I am surprised though that my daughter hardly speaks about the allergies she's facing. And yet it doesn't shocks me at the same time. It's fare more in the expectations of the things that we could hope that openness and straight forward speaking are elements truly implemented in today's teens life. The mirror though sends another image. There's in the schedule and the lack of time, spare slots in full booked agenda's not such a thing as 'what's bothering you' ' is this about your health'. And this hasn't change so much since long. Being different makes that you should come up with something hyper, hot, glossy, way to wow or what have you. Sites about teens and their allergies are mostly evolving under the wings of an adult site and with a truly a back up from professionals and teams of specialists. Out there, in the school yard, at the picnic table, during a school trip, entrance at high school, another Prom it is in most of these situations about one self and the guts to speak out for your self and to stay very steady on your both feet.

It's definitely as beautiful as the colors in the pencil box. But she will draw her lines in H and B.

Sunday, April 17, 2011

Spring ... waves

Sunday's , I like Sunday's like today, an easy and warm day. laying down in the garden under a nice plaid, once brought from Portugal, getting rid of my back pains, while closing my eyes and just hearing the birds in the garden, girls running and screaming, spring is all around, I hear the kids from the shanty town, biking in the street, having fun. Mimosa blossoms in th end of the garden, a tiny tree but I suppose her flowers and yellow soft balls are so strong that they cause easily eczema and all sort of allergies. my allergy girls definitely runs along with small swollen facial spots. The children's hospital from Chicago asks for volunteers, allergy patients for a research.  I consider to send them a letter and see what the chances can be.
With 12 million Americans allergic...................
But I'll try anyway, it would be great to have my allergy daughter in a research done among allergy patients.
In the meantime the weekend passes.
Lots of dishes and different people, this is certainly one of the beautiful aspects of living in various countries. And there's not to much time to think to much about one's own troubles,
spring comes with energy and waves of impulses and adventures, longer days and late sunset.
My favorite season.

Saturday, April 16, 2011

Allergy (Allergies) Symptoms, Causes and Signs on MedicineNet.com

Allergy (Allergies) Symptoms, Causes and Signs on MedicineNet.com

More and more information.
I feel after all those years that you'll never finished with new collected data, information, insights. It's very comfortable to feel supported in your opinions and observations, it's pointing out that a serious diagnosis and powerful attention without any need to become hysterical is just the way to deal with allergies. When your child suffers, you like to have people out there who do understand and and respect, it's helpful in one's relation towards others, family, peers to transfer these articles and sites. Allergies are a very serious issue. And you can live wonderful well while being an allergy girl, but you need to respect some golden rules. So take that as a message, a personal one, we came from far, we lived in different spots and still she does fine my allergy girls. Not without mentioning that it asks an investment, patience and empathy.

Wednesday, April 6, 2011

It's about the right balance!

Scope - medical blog - Stanford University School of Medicine


Common sense. Perception and perspective. Don't get hysterical. Don't forget that many patients seem or think they're allergic but are not. All need to be placed in a reasonable perspective, we can't blame hole communities for some who are allergic. Inform, educate and respect towards each and all seem to be the ever best. It's about finding a right balance. Turn the allergy into something positive. Instead to ban peanuts, come up with an alternative! Share your favorite recipe with the non allergic.   

Food allergies: Something to take seriously - Tufts Daily - Op-Ed

Food allergies: Something to take seriously - Tufts Daily - Op-Ed

Joking about allergies can end up in pretty dramatic situations. Better not.
Those who suffer from food allergies or respiratory allergies are both risk groups. So better not fooling around with their allergies.
The story from this student is rather sad, his story is much about feeling excluded and not able to have dinner with friends because of the variety of allergies he's facing. I think there are limitations and that's so frustrating but better turn the page into the possibilities you have and all things you can eat instead of the focus of what not. It's how I try to educate our daughter and her environment. Otherwise life becomes a bummer every day. I see the pain and the feeling of being different and like my allergy daughter can scream out: 'I am never able to eat anything'. OK that's fine, sometimes, you need to feel just terrible but the focus should be on what you can have. Especially in the States there are these days so many books about all kind of adapted dishes and sites with restaurants where one can easily go and have an excellent moment without a worry. Without a positive mind the allergies will take over and that's not what one should let happen. My head turns always, like today with my allergy daughter travelling to Barcelona with her school. Will she be safe....will there be some nice food she can eat.... The great thing is she travels, she goes, water and fruits will do for some days, plain , basic ingredients and common sense.

Tuesday, April 5, 2011

Peanut allergy: no school

Where a peanut allergy becomes a reason to refuse children school admission! This is what happened in the Netherlands. I am confused, I was told by a mother in Amsterdam over the weekend when she asked me about my projects. We talked about severe allergies, living around the world and attending different school systems and doing fine like my allergy daughter.





Amsterdam, zaterdag 26 februari 2011

Pinda-allergie 

maakt vinden schoolprobleem

Toen de 7e Montessorischool Madelief (4) weigerde vanwege haarpinda-allergie, begon voor haar ouders de zoektocht naar een andere school.
MALIKA SEVIL
Madelief (4) was al op kennismakingsgesprek geweest bij de juf van het 7e Montessori in het Rembrandtpark. Nee, de pinda-allergie leek geen probleem te zijn, reconstrueert vader Olivier ter Brake het genoeglijke gesprek. “Tot onze grote verbazing kregen wij kort daarna, twee weken voor Madeliefs eerste schooldag, het bericht van de Montessori dat zij haar toch niet konden plaatsen.” Reden: haarpinda-allergie. Madelief was beter op haar plaats op een schoolvoor chronisch zieke kinderen.
Ter Brake: “Speciaal onderwijs! Waarom? Normale kinderen met eenpinda-allergie tussen kinderen met zware epilepsie, kanker en terminale ziektes zie ik niet zitten. Ze is een gezond kind. Het enige wat zij nodig heeft, is een omgeving die pindavrij is, én goed toezicht.”
Toch is een pinda-allergie minder onschuldig dan het klinkt. Sterker: die kan levensbedreigend zijn. Als een ander kind pindakaas heeft gegeten en een kus geeft, kan het al mis zijn. Bij een anafylactischepindareactie kan de keel opzwellen met een moeizame ademhaling of zeer ernstige benauwdheid tot gevolg. Dan moet de patiënt met een zogeheten Epipen adrenaline worden ingespoten om de reactie af te remmen en met de ambulance naar een ziekenhuis worden vervoerd.
Ter Brake: “Madelief heeft op school helemaal geen medische begeleiding nodig, maar in het uiterste geval moet eerste hulp worden geboden. Als je als school geen eerste hulp wilt verlenen, wat voorschool ben je dan?”
Veel scholen willen dat risico toch niet lopen en weigeren op voorhandkinderen met een pinda-allergie, weten ze bij de Stichting Voedselallergie. Carla Groeneveld van de stichting noemt het regelrechte discriminatie. “Kinderen met een pinda-allergie zijn prima in staat naar de school om de hoek te gaan. Sterker, scholen mogen kinderen helemaal niet weigeren op grond van een allergie.”
Zij denkt dat de scholen bang zijn om in te grijpen als het toch misgaat. “Terwijl het niets voorstelt. Het is gewoon een kwestie van jezelf goed informeren wat je moet doen bij een noodgeval. En daar zijn protocollen voor.” Verder, zegt Groeneveld, moeten scholen een beetje ‘rekening houden’. Geen pindakaas op tafel tijdens de pauze, geen pinda’s tijdens feestjes en controles op traktaties.
Volgens de 7e Montessori is het onmogelijk de school pindavrij te maken en daarom, zegt directeur Jan Boekhout, is de afwijzing juist in het belang van het kind.
Over de timing van deze mededeling, twee weken voor de eerste schooldag, zegt hij: “De moeder van Madelief vertelde pas ná de inschrijving dat deze aandoening dermate serieus is dat de kinderartshaar een pindavrije school had aangeraden.”
Kon de school een pindavrije school garanderen? Het antwoord is, om diverse redenen, nee. Boekhout somt op. De school met meer dan vijfhonderd leerlingen en veertig personeelsleden ontvangt dagelijks nieuwe leerlingen, ouders, stagiair(e)s en gasten. “Die kunnen wij onmogelijk vooraf informeren over de situatie.” In de hele school ligt vaste vloerbedekking. Die wordt elke middag grondig gestofzuigd, zegt Boekhout, maar resten van voedingsmiddelen kunnen tussentijds niet worden verwijderd. Dan het overblijven. De school kan niet garanderen dat geen etensresten met pinda’s achterblijven. Tot slot worden jaarlijks honderden traktaties en maaltijden uitgedeeld waarpindaresten in kunnen zitten. Kortom: geen doen.
Na de afwijzing door Montessori besloot ter Brake ‘geen tijd meer te verspillen aan het halen van het gelijk’, maar naar een andere schoolvoor Madelief te zoeken. Nogal ingewikkeld, twee weken voor de eerste schooldag. Nadat ze vijftien scholen hadden benaderd, was het toch raak. Het is een school waar ze volgens ter Brake hun stinkende best doen om Madelief een veilige omgeving te bieden, maar het is ook een zwarte school, die, vrezen haar ouders, haar een taalachterstand kan opleveren.
Madeliefs ouders zoeken dus verder. Ze hebben 41 scholen buiten het eigen postcodegebied gebeld. Die waren vol, hanteerden strikt het aannamebeleid op postcodegebied of weigerden Madelief vanwege haar pinda-allergie. “39 keer was het antwoord nee, één keer ja en één keer bijna ja,” constateert ter Brake teleurgesteld. “Ik ben geen statisticus, maar ik denk dat per jaar meer kinderen na een ongelukkige val op school overlijden dan na een dodelijke allergischereactie.”
Copyright: Malika Sevil




Video - Breaking News Videos from CNN.com

Video - Breaking News Videos from CNN.com

OK this is all very over the top.
(I hope that in Europe this is not possible. I will certainly check, especially after I spoke with a mother in Amsterdam over the weekend about children who need to go to special school institutions now in the Netherlands.))
The media attention this particular school goes after, is in my opinion beyond any reason. It's good to listen to the Specialist in the attached CNN Video, who keeps the picture about allergies simple and very reasonable.
Respect some rules for your child and your family, talk with your medicine so the child, teen, student will participate like all others in school and college life. To keep them safe!
My rule has been since ever: Don't taste anything; don't let allergic children taste food.
Stick to your diet, eat and enjoy all the things you can have!